Receiving a diagnosis of one of these unknown conditions is a double edged sword. The patient finally has confirmation that they aren't crazy, lazy or a wimp. On the other hand it is a struggle to educate family members and friends about what they're dealing with. Nobody wants to be a burden on others or seem like they bring less to the table than anyone else. So we struggle. We struggle everyday to get out of bed. We struggle to make it through a work day. We struggle to make the drive home safely. We struggle to be an active member of our family. This is our normal. We can't expect anyone to ever understand, but it would be incredibly amazing if they did. However, for anyone to fully understand, it would mean that they too suffer from the same affliction. And as glorious as it would be to have an understanding partner in the daily struggles; the thought of someone else dealing with these same things is terrible.
So we fight. We fight to work hard and be there for our families. We fight so nobody knows that we are taking medications that nobody knows the long term affects of. We fight even on the days when the medicine isn't working like it should.
The hardest part is knowing that you weren't always like this. That at one time your life wasn't ruled by medication schedules or monitoring when you eat or what you eat to maximize the benefits of the medicine that simultaneously controls your life and gives it a decent quality.
It can be a lonely place. We march on in silence hoping no one notices on the days when we're not our best and trying to make up for it on the days we are.